Showing posts with label Health. Show all posts
Showing posts with label Health. Show all posts

Sunday, September 01, 2013

Cancer Status: August 31, 2013

 I had a brain scan two weeks ago and got the results this Friday. My anxiety grew as Friday approached.. I was sure my health was deteriorating and bad news was on the way. That just goes to show how out of touch I am with my body.

Things either haven't changed or they are better. My lab values are good; tumor markers continue to improve. Physical exam revealed that the tumors are shrinking. My ankle and shoulder have healed. Many days it's hard to believe I'm so fortunate when NPR radio is broadcasting the deaths or hundreds and sometimes thousands.

Ruth's new body image
The only area of concern is my weight. I've lost too much. For those of you who have known me for a long time, this may be hard for you to imagine and it is a mixed blessing for me. I've lost a lot - I've given away many of my clothes gathered from years spent combing thru Good Will and the Salvation Army. I couldn't keep my pants up any more.  My jacket shoulders droop to my elbows. My shirts are like tents and my arms are like sticks. There's no apparent reason for the loss. My appetite is good. I'm not depressed. All my markers are good.

The next step is to check my thyroid. I'll get the lab work done next week. Meanwhile, I've added additional carbs to my diet. That's tricky to do while avoiding sugar, but it sure is fun!

The MD also shared his pessimism about me ever driving again. He knows what a loss this is for me. I ask him about  it every time I see him. I'll probably keep asking him, too.

But I'm relieved and grateful to be doing so well. I hope you are doing well, too, and look forward to your news.



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Tuesday, June 04, 2013

Scan Anxiety

MRI machine at Seaside Imaging Center
MRI machine at Seaside Imaging Center (Photo credit: Wikipedia)
I've had another round of scans -- bone scan, pet scan, CT scan, angiography -- and then, just to mix things up a bit, I fell down a few stairs fracturing my ankle and shoulder. It was hard to take all this in stride. My fears got the best of me. I imagined the worst.

I gather that most people with metastases imagine the worst every time they schedule their scans. If they don't, their denial reflexes must work out at the gym every day.

Everything but the fractures turned out fine. For the time being I'm hobbling around with a hard boot and a sling, some pain, no treadmill, and new bars on the toilet so I can get up and down. One of my docs said he'd write me a prescription that said " Be more careful, Ruth." And how well could I  manage without Glenn to literally lend me a hand to get in and out of chairs and the car?

Between the cancer and my broken leg I have had plenty of time to do nothing but try to keep my anxiety under control. Writing helps, so here goes.

I broke my leg skiing when I was a junior in high school. Time and treatments sure have  changed. That year I spent four months in a plaster cast from my toes to my hip.  But I was young and not one to complain. Well, I didn't think of all that whining as complaining.

I spent the first week in the hospital. The doctor told me that  my discharge would depend on Friday's x-rays.  If the bones weren't set right he'd have to break and re-set them again. At least that's what I thought he said. Re-break my leg? That scared me silly AND there was a party I didn't want t miss Friday night. I guess I did complain.

The hospital was so full  they put me in a private room on the men's floor. (Yes, just like the help wanted ads, the wards were segregated by gender  then.) Every day a little Italian man walked the corridor in his johnny and slippers. Initially he ignored me--wouldn't even make eye contact as he passed my door-- but with each day that passed he became more chatty until he finally came right in and made himself at home. He wanted me to know all the things a young  girl with a broken leg would have to endure. It was quite an assortment of things.

Most distressing was his prediction that my leg would hurt for the rest of my life whenever the wind blew in the same direction it was blowing when I fell and heard that terrible crack.

Another fond memory of that spring hobbling around with cast and crutches was Stephen's high  school graduation. He was  my new boyfriend and graduating from a a proper New England prep school. He cared about what others thought of him and he wanted me, as an extension of him, to impress.

 I had a new chic yellow sheath dress  to wear to the graduation, which would be my first event without plaster. But In those days  people  autographed your cast and mine looked pretty grungy.  You know, roses are red, etc. But, the cast was scheduled to come off the week before his graduation.  I thought, let's give this blasted cast a royal send-off.  I invited friends to forsake their ballpoint pen quips, grab magic markers and go to it. My last week encased in plaster would be glorious.

Surprise, surprise. That same doctor let me down. The cast didn't come off as expected  It would stay for at least one more week of sponge baths, manipulating knitting needles inside the cast to scratch that incessant itching, and now wearing a cast that flaunted flowers, serpents, animals, dirt from four months of traipsing through the streets, off-color rhymes and crumbling plaster around the toes.   At graduation I looked lovely if you ignored my cast. I looked like tthe advent of the sixties if you ignored my lovely but  conservative dress. But, I must admit, either way we made a striking couple.

Last week while I waited and called and waited some morefor the results of my scans I thought about those adolescent years, chuckled at the memories and reflected on the changes. The heavy black plastic holding my ankle in place resists cast graffiti and comes off for a shower. The fall has complicated my life for the short term. But here's what I've learned in the intervening years:

  • That little Italian man was wrong. My leg doesn't hurt when the wind blows
  • No one at Stephen's graduation cared about the hippie-esque cast
  • The man you're with will always cares about how you look
  • This cancer and the fall/break are unrelated
So, given the circumstances I'm doing fine. I hope you're doing fine, too.

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Saturday, April 20, 2013

Status Update: Have a Cream Puff to celebrate this week

Yup, more good news.  Tumors shrinking. Blood pressure more stable.  The week ends with positive feedback from my oncologist. So, have a cream puff or maybe a napoleon.

Guess I'll get my seaweed snack. Umm, umm good.

Thursday, April 11, 2013

Why get up in the morning?

Pondering the meaning of life, for sure.
Pondering the meaning of life, for sure. (Photo credit: Wikipedia)

I guess you're waiting for me to report on something that's happening, something that tells me I'm getting better or worse. Something that tells me what  I can expect and what you can expect for me. Then, I"ll be able to tell you how I am.  But I'm learning that this disease doesn't happen that way. No news is good news. Symptoms mean treatment of some sort. Since there's no news to report, I better get on with my life.

I've been doing the things I can control -- regular exercise, diet, support group, writing group, stay busy...but I've been dancing around the critical question -- why do I want to live?

Prior to hospitalization my life meaning came from work. Let me use my writing skills to bring resources to non-profit agencies. Pursue the resources that will enable them to provide strong programs for their clients.  And, volunteer time? I worked for women's issues. 

Now, I'm rethinking. What's important to me? No children or grandchildren, which is what many of my friends care most about. I'm agnostic, so the spiritual life doesn't grab me. I'm interested in lots of things, but none that are shaking me by the shoulders saying I need you, I need you.

Glenn and I love each other and talk about our life together and things we'd like to do and places we'd like to go. Oh, here's an idea. Maybe I should make it my life work to turn him into a liberal. I'd have to live forever!

So what do you think? How do I sort through this? Do you have ideas? What makes you want to get up in the morning?

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